摘要
目的了解原发性肝癌(PLC)患者的知情状况、生活质量及其相关性,为医护人员正确履行告知义务,改善患者生活质量提供依据。方法采用PLC患者知情状况量表和生活质量评定量表(QLS-PLC)对65例PLC患者进行问卷调查。结果PLC患者知情状况评分为(32.2±10.7)分,处于中等水平;38.5%患者对诊断非常清楚,44.6%仅知道一些;40.0%～49.3%PLC患者对病因、疾病所处的阶段、治疗方式、药物的作用、出院后的注意事项完全不知道。PLC患者生活质量总分为(129.7±7.0)分。患者对诊断的知情与其生活质量呈显著正相关(P<0.05);其知情状况与生活质量中的躯体状态、心理状态呈显著正相关(P<0.01,P<0.05)。结论适当提高肝癌患者知情状况,有利于提高其生活质量。医护人员应加强自身专业知识的学习,提高自己的告知能力,将疾病诊断、治疗的相关知识主动、有效地传递给患者,以提高其生活质量。
Objective To evaluate the informed status and quality of life of patients with primary liver cancer （PLC） and the relationship between them. Methods Sixty five PLC patients were investigated by a questionnaire with Inventory of Informed Status for Patients of PLC （IIS-PLC） and Quality of Life Scale for Patients of PLC （QLS-PLC）. Results The score of IIS-PLC among PLC patients was 32.2 ± 10.7, at medium level. 38.5 % were well aware of their diagnosis and 44.6% were less aware. 40.0% to 49.3% PLC patients knew nothing about etiology, disease stage, treatment plan, therapeutic effect of medication, and precaution after discharge. The score of QOL among PLC patients was 129.7 ± 7.0. There was a significantly positive relationship between awareness of diagnosis and quality of life of PLC patients （P〈0.05）, and informed status was also significantly correlated with patients＇ physical status and mental status （P〈 0. 01 ,P〈0.05）. Conclusion Moderate improvement in informed status of PLC patients helps enhance their quality of life. Medical staff should consolidate their professional knowledge and upgrade informing ability by continuous learning and practicing so as to actively and effectively pass disease-related knowledge to patients.
关键词
原发性肝癌
知情同意权
知情状况
生活质量
相关性
数据收集
primary liver cancer
informed consent
informed status
quality of life
correlation
data collection
作者简介
赵丽萍（1974-），女，硕士，主管护师。
