摘要
目的分析孤独症谱系障碍(autism spectrum disorders,ASD)患儿家长生活质量及影响因素,为改善ASD患儿家长生活质量提供理论基础。方法将本院2010年8月至2016年1月收治的118例ASD患儿的家长纳入观察组,并选取同期120例健康儿童家长(于ASD健康宣教时确认入组)纳入对照组。采用生活质量综合评定问卷(GQOLI-74)调查分析两组儿童家长的生活质量,并比较观察组不同性别患儿、不同病程患儿、不同职业家长、不同文化程度家长GQOLI-74评分差异,将存在统计学差异的因素纳入Logistic多因素回归分析,总结影响ASD患儿家长生活质量的危险因素。结果观察组家长生活质量各维度得分及总分均低于对照组(P<0.05)。患儿性别、患儿病程、家长职业、家长文化程度是家长生活质量的影响因素(P<0.05)。结论 ASD患儿家长生活质量普遍较差,且多种因素可导致其生活质量进一步下降,重视ASD患儿家长负性情绪并针对其存在的危险因素实施合理干预,有望缓解其心理压力、提高生活质量,从而为ASD患儿康复创造良好的家庭环境。
Objective To study the quality of life and its influencing factors of parents of children with autism spectrum disorder（ASD）, and to lay a theoretical foundation for improving the quality of life of ASD children＇s parents. Method 118 cases of ASD children＇s parents admitted in our hospital from August 2010 to January 2016 were enrolled in observation group, and 120 parents of healthy children were included in control group when they received health education for ASD. The quality of life of the two groups children＇s parents were investigated and analyzed by using the quality of life questionnaire（GQOLI-74）, and compared the scores of GQOLI-74 of children with different gender, different course, different occupation and different cultural degree of parents in observation group. The factors of statistical difference were included in the Logistic multi factor regression analysis, and summarized the risk factors that affect the quality of life of parents. ResultThe scores of quality of life and the total score in each dimension in observation group were lower than control group（P〈0.05）. Children＇s gender, duration of disease, parents occupation, parents＇ educational level were the influencing factors of parents＇ quality of life（P〈0.05）. Conclusion Quality of life of parents of ASD children is generally poor, and many factors can lead to a further decline in their quality of life, pay attention to negative emotion of ASD children＇s parents and carry out reasonable intervention according to the risk factors of its existence, is expected to ease the psychological pressure, improve the quality of life.
出处
《中国医学前沿杂志（电子版）》
2016年第9期145-148,共4页
Chinese Journal of the Frontiers of Medical Science(Electronic Version)
关键词
孤独症谱系障碍
患儿家长
生活质量
影响因素
Autism spectrum disorder
Parents
Quality of life
Influencing factors
作者简介
通讯作者：刘伟E-mail：liuwei197311@163．com
