摘要
目的 对我国“克罗恩病”相关互联网医学科普信息质量进行评估,并初步分析其可读性.方法 使用我国常用互联网搜索引擎,检索并筛选克罗恩病相关中文医学科普信息.两位专科医师使用DISCERN体系对纳入信息的质量进行评估,并对两人各部分评分进行一致性分析.利用已出版或正式发表的各阶段语文材料,通过建立中文可读性分级模型,分析纳入科普信息的可读性难易程度.结果 共有13个网页信息被纳入最终研究,其均来自于商业性机构性网站,作者为公立医院医生的信息共7个(53.8%).两位专科医师使用DISCERN体系评估的第1部分、第2部分和所有评分的Spearman系数分别为0.685、0.556和0.607(P值均<0.001).大多数科普信息未提供足够的信息来源、依据和利益冲突等出版物最常规的基本要素,相应DISCERN评分分别为1.8、1.7和1.3分.治疗信息评估方面,多数存在多方面的信息缺失和内容错误,所有相关7个要点均分均未超过2.0分.中文可读性分级方面,分级高于义务教育水平信息共计11个(84.6%),其中大专及以上水平信息共计9个(69.2%).结论 我国克罗恩病相关互联网医学优质科普信息数量少,同时可读性难度大,亟待引起学界重视和完善.
Objective To assess the quality and readability of information regarding Crohn's disease (CD) provided by common websites in China.Methods Using the common search engines,to search and screen the medical science information about CD in Chinese.Quality of the information was assessed using the simplified DISCERN questionnaire by two CD experts,and the consistency of scores was analyzed using Spearman rank test.Different levels of official Chinese language teaching materials were used for building readability model.The readability of the included information was predicted using the model finally.Results Thirteen pieces of information were eventually included in this study,all of which were derived from commercial websites.Seven pieces of information were written by doctors from public hospital.DISCERN questionnaire showed an excellent consistency in Chinese documents,and Spearman coefficient was 0.685,0.556 and 0.607 (all P values < 0.001) for publication reliability,treatment options and the total.Majority of the information lacked the fundamental elements of publication,including unclear sources and production of information,and undeclared conflict of interest.The corresponding score was 1.8,1.7 and 1.3.In the aspect of quality of treatment options,many websites did not provide adequate information and had a wrong content.The scores of all 7 items were below 2.0.The websites did not show readability enough,84.6% (11/13) information exceeded the middle school reading level,and 69.2% (9/13) even beyond junior college level.Conclusion The quantity of high quality information about CD on the internet in China is worrisome in addition with poor readability,which should be brought to the forefront of the academia.
作者
柏小寅
张永伟
李骥
李玥
钱家鸣
Bai Xiaoyin;Zhang Yongwei;Li Ji;Li Yue;Qian Jiaming(Department of Gastroenterology,Peking Union Medical College Hospital,Peking Union Medical College,Chinese Academy of Medical Sciences,Beijing 100730,China;Institute of Linguistics,Chinese Academy of Social Science,Beijing 100730,China)
出处
《中华炎性肠病杂志（中英文）》
2018年第2期102-107,共6页
Chinese Journal of Inflammatory Bowel Diseases
基金
中国医学科学院医学与健康科技创新工程项目(2017-I2M-3-017)
青年教师培养项目(2015zlgc0706)
2010国家临床重点专科项目.
作者简介
通信作者:李玥,Email:yuelee2001@sina.com.
