摘要
目的探讨孤独症儿童照顾者的照顾负担以及对喘息服务的需求情况,为开展针对性的喘息服务提供参考。方法选取在某三级医院儿童康复科住院的117位孤独症儿童照顾者为研究对象。采用一般资料调查表、照顾者负担量表、喘息服务需求调查问卷进行横断面调查。结果孤独症儿童照顾者的照顾负担总分为(46.16±16.03)分,67.52%孤独症儿童照顾者存在中重度的照顾负担。多元线性回归分析结果显示,患儿康复时间、照顾者与孩子的关系为祖父母、婚姻状况为离异或丧偶、家庭月收入、家庭居住地为农村是孤独症儿童照顾者照顾负担的影响因素(P<0.05),可解释总变异的43.50%。69.23%孤独症儿童照顾者表示需要喘息服务,需要喘息服务组的照顾负担得分高于不需要或不确定组(P<0.05)。结论孤独症儿童照顾者的照顾负担重,对喘息服务的需求高,可根据不同特征和需求的照顾者制定个性化喘息服务方案,以减轻照顾者照顾负担。
Objective To explore the care burden and respite care needs of caregivers for autistic children,in order to provide reference for the implementation of targeted respite care.Methods A cross-sectional survey was conducted among 117 caregivers of children with autism who were hospitalized in the pediatric rehabilitation center of a tertiary hospital.The general information questionnaire,zarit burden inventory,and respite care needs questionnaire were used for the survey.Results The total care burden of caregivers of autistic children was(46.16±16.03),and 67.52%of caregivers of autistic children had moderate and severe care burden.The results of multiple linear regression analysis show that the recovery time of children,the caregiver being a grandparent,the marital status being divorced or widowed,the monthly family income and the family residence in the countryside are the influencing factors of the care burden of caregivers of autistic children(P<0.05),accounting for 43.50%of the total variance.69.23%caregivers of autistic children indicated that they needed respite care,and the care burden score of the group needing respite care was higher than that of the group not needing or uncertain(P<0.05).Conclusion Caregivers of children with autism have a heavy burden of care and a high demand for respite care,and individualized respite care programs can be formulated for care-givers with different characteristics and needs to reduce the burden of caregivers.
作者
徐培培
王庆生
徐雯婷
XU Peipei;WANG Qingsheng;XU Wenting(School of Nursing,Anqing Medical College,Anqing 246052,China;Department of Pediatric Rehabilitation,Anqing Traditional Chinese Medicine Hospital,Anqing 246004,China)
出处
《济宁医学院学报》
2025年第1期56-60,共5页
Journal of Jining Medical University
基金
安徽省中青年教师培养行动青年骨干教师境内访学研修资助项目(JNFX2023112)
安徽省高校哲学社会科学重点项目(2022AH052541)。
