摘要
多囊卵巢综合征是育龄女性常见的内分泌疾病,也是导致无排卵性不孕的最主要原因。近年来,该疾病在青年育龄女性中的发病率逐渐上升。本研究以深入访谈为研究方法,探讨青年女性多囊患者的患病经历及其发挥能动性应对疾病的具身经验。研究发现,复杂慢性病的特征与性别规范的双重压力塑造了青年女性多囊患者的具身经验。多囊患者真实生活世界中动态的身体与科学话语中严格的治疗要求相冲突,多囊所引起的疾病后果与社会文化对青年女性的角色期待相悖。面对难以痊愈的动态身体和“非女性化”的具身特征,多囊患者逐渐发展出具有能动性的、完整表达女性价值的反思性身体实践。
Polycystic ovary syndrome(PCOS)is a common endocrine disorder in women of childbearing age and the most common cause of anovulatory infertility.In recent years,the prevalence of the condition has gradually increased in young women of reproductive age.This study used in-depth interviews as a research method to explore the illness experiences of young women with polycystic disease and their embodied experiences of coping with the disease.It was found that the dual pressures of the characteristics of a complex chronic illness and gender norms shape the embodied experiences of young women with polycystic disease.The dynamic body of the polycystic patient's real life conflicts with the strict therapeutic paradigm of scientific discourse,and the consequences of the disease caused by PCOS contradict the socio-cultural role expectations of young women.Faced with a dynamic body that is difficult to heal and"nonfeminine"embodied characteristics,PCOS patients gradually develop active reflective body practices that fully express feminine values.
作者
张庆宁
林淑敏
ZHANG Qing-ning;LIN Shu-min
出处
《青海民族研究》
CSSCI
北大核心
2024年第1期55-64,共10页
Qinghai Journal of Ethnology
基金
兰州大学“以研代学”类课程建设项目“质性研究方法”课程、兰州大学教学改革示范课程项目“医疗与健康社会学”课程阶段性成果。
关键词
青年女性多囊卵巢综合征患者
具身经验
性别规范
慢性病
young women with polycystic ovary syndrome
embodied experience
illness experience
gender norms
chronic disease
作者简介
张庆宁,女,宁夏盐池人,兰州大学哲学社会学院副教授人类学博士,主要从事医学人类学、应用人类学研究;林淑敏,女,福建福州人,兰州大学社区健康跨学科研究所特聘助理研究员,厦门大学社会与人类学院硕士研究生,主要从事医学社会学研究。
