摘要
目的 分析先天性心脏病(CHD)患儿家庭功能现况。方法 选取2021年6—12月阜外华中心血管病医院收治的206例CHD患儿的照顾者作为研究对象,使用郑州大学护理与健康学院自制调查问卷及家庭功能评定量表(FAD)对患儿家庭功能情况进行调查,分析CHD患儿家庭功能现况。结果 FAD量表调查结果显示,受调查家庭中63个(30.58%)问题解决功能异常,118个(57.28%)沟通功能异常,131个(63.59%)角色功能异常,119个(57.77%)情感反应功能异常,116个(56.31%)情感介入功能异常,182个(88.35%)行为控制功能异常,145个(70.39%)总的功能异常。在职者问题解决、沟通、情感反应、情感介入、行为控制、总的功能维度得分较待业者低(P<0.05)。大专及以上受教育程度患儿照顾者问题解决、情感反应、总的功能维度得分较初中及以下、高中或中专低(P<0.05)。简单CHD患儿家庭问题解决、沟通、情感反应、情感介入、行为控制、总的功能维度得分较复杂CHD低(P<0.05)。结论 CHD患儿家庭功能异常情况普遍存在。照顾者在职状态、受教育程度、CHD复杂程度均会对家庭功能产生影响。
Objective To analyze the family function of children with congenital heart disease(CHD).Methods A total of 206 caregivers of CHD children from June to December 2021 in the Fuwai Central China Cardiovascular Hospital were selected to investigate the family function of children with CHD using self-designed questionnaire and family assessment device(FAD).Results The FAD scale survey results showed that 63(30.58%) of the surveyed families had abnormal problem solving function, 118(57.28%) had abnormal communication function, 131(63.59%) had abnormal role function, 119(57.77%) had abnormal emotional response function, 116(56.31%) had abnormal emotional intervention function, 182(88.35%) had abnormal behavior control function, and 145(70.39%) had total functional abnormalities. The scores of problem solving, communication, emotional response, emotional intervention, behavior control and total functional dimensions of the employed were lower than those of the unemployed(P<0.05). The scores of problem solving, emotional response and total functional dimensions of college and above education level were lower than those of junior high school and below, senior high school or technical secondary school(P<0.05). The scores of problem solving, communication, emotional response, emotional intervention, behavior control and overall functional dimensions of children with simple CHD were lower than those of complex CHD(P<0.05).Conclusion Family dysfunction is common in children with CHD. Caregivers’ in-service status, education level and CHD complexity will have an impact on family functions.
作者
岳美晨
杨巧芳
YUE Meichen;YANG Qiaofang(College of Nursing and Health,Zhengzhou University,Zhengzhou 450000,China;Children’s Heart Center Ward 1,Fuwai Central China Cardiovascular Hospital,Zhengzhou 450000,China;Nursing Department,Fuwai Central China Cardiovascular Hospital,Zhengzhou 450000,China)
出处
《河南医学研究》
CAS
2023年第3期521-523,共3页
Henan Medical Research
基金
河南省医学科技攻关计划联合共建项目(LHGJ20200110)。
关键词
先天性心脏病
家庭功能
现况调查
congenital heart disease
family function
status survey
作者简介
通信作者:杨巧芳,E-mail:eaam68@163.com。
