摘要
目的建立以心肌病为研究对象的专病数据库,为心肌病临床研究提供支持。方法以患者主索引(Enterprise Main Patient Index,EMPI)为主线,在临床数据中心的基础上经过数据整合、治理、质控,构建心肌病专病数据库。结果心肌病专病数据库包含12个模块,下设33个子模块,共收集12023例患者数据,配合完成2项心肌病临床研究。结论专病数据库的建立,增加了医疗数据利用率,为临床研究提供了强有力的信息服务和数据支撑。
Objective To establish a disease specific database for cardiomyopathy,to provide support for clinical research of cardiomyopathy.Methods Based on the enterprise main patient index(EMPI)and data from the clinical data center,a cardiomyopathy specific database was constructed through data integration,management and quality control.Results The cardiomyopathy specific database included 12 modules and 33 sub modules.A total of 12023 patients were collected to cooperate with the completion of 2 clinical studies of cardiomyopathy.Conclusion The establishment of specialized disease database greatly increases the utilization of medical data and provides strong information service and data support for clinical research.
作者
尚诗
袁骏毅
岑星星
SHANG Shi;YUAN Junyi;CEN Xingxing(Information Center,Shanghai Chest Hospital Affiliated to Shanghai Jiao Tong University,Shanghai 200030,China)
出处
《中国医疗设备》
2022年第6期115-118,共4页
China Medical Devices
基金
上海市经信委信息化发展专项(202002009)。
关键词
专病数据库
患者主索引
数据治理
心肌病
specialized disease database
primary index of patients
data governance
cardiomyopathy
作者简介
通信作者:袁骏毅,正高级工程师,主要研究方向为医院信息化。通信作者邮箱:yuanjunyi_yjy@163.com。
