摘要
目的:使用"核心讨论组"方法探讨中国残疾人生存质量的构成领域和方面。方法:广州地区39名残疾人、照顾者及医护人员按照不同类型分为7个讨论组,使用半结构化的形式开展核心讨论,进行书面记录和录音,并使用定性分析方法对材料进行分析。结果:残疾人的生存质量主要包含15个方面,组成5个领域:生理(包含生理功能、残疾程度)、心理(包含精神状况、能力、自尊)、社会关系(包含人际关系、社会支持)、环境(包含居住环境、无障碍设施/辅助器械、经济状况、娱乐休闲)和社会参与领域(包含就业、教育/保障制度、尊重接纳、歧视嘲笑)。结论:残疾人生存质量的15个构成方面跟普通人的大致相同,区别在于残疾人还重视残疾程度、无障碍设施/辅助器械、教育/保障制度。核心讨论组作为一种有效的访谈法可以作为一种有效的研究残疾人生存质量的工具,有助于构建评估残疾人生存质量量表的领域和方面。
Objective： To understand the dimensions and the facets of QOL for people with disability.Methods： 39 people including people with disability,carers and medical staff who provided care in Guangzhou were divided into seven focus groups.Each group was interviewed in a semi-structured form.Audio record and written notes were used and these materials were analyzed by qualitative data analysis methods.Results：The study yielded 15 QOL domains grouped into 5 dimensions： physical health（physical functioning,severity of disability）,psychological health（mental health,ability, self-esteem）,social function（interpersonal relationship,social support）,environment（inhabitancy,barrier-free facilities/assistive devices,financial situation,entertainment and recreation）,social participation（employment,education/social security,acceptance and respect,discrimination）.Conclusions：15 facets in QOL scale for people with disability were almost similar to those for normal people.The difference was that people with disability paid attention to severity of disability,barrier-free facilities/assistive devices,and education/social security.The focus group discussion is an effective qualitative interview technique which can be a practical method of studying quality of life for people with disability,and it can help to evaluate the dimensions and the facets of QOL for people with disability.
出处
《中国心理卫生杂志》
CSSCI
CSCD
北大核心
2008年第6期465-468,共4页
Chinese Mental Health Journal
基金
欧盟第六个研究框架计划项目(DIS-QOL)(编号:SP23-CT-2005-513723)
关键词
核心讨论组
残疾人
生存质量
领域
方面
focus group discussion
people with disability
quality of life
dimension facet
作者简介
通讯作者
通讯作者
